Personalized health and medicine in social science and humanities perspectives

The 5 and 6 November 2021 will take place the second conference of the SNSF Sinergia project Development of Personalized Health in Switzerland: Social Sciences Perspectives (DoPHiS). It will gather researchers from different disciplinary backgrounds to shed light on the social, economic, ethical, legal, and political stakes raised by the ideals of «precision» and «personalization » in biomedical and public health initiatives, policies and practices. It is organized around presentations from both members of the DoPHiS teams and international invited guests.

Informations

• Inscriptions limitées pour les personnes en lien avec le thème de la santé. Inscription obligatoire pour le présentiel - Délai au 28 octobre 2021, 8h00.
  Formulaire d'inscripion
• Certificat Covid obligatoire.
• Renseignements : dophis@unil.ch (nous contacter pour obtenir le lien zoom)

Extrait du programme (programme complet à droite)

Friday November 5th

• 9h15-11h: Predictive Medicine and Diagnoses - Chair: Florian Jaton, UNIL
  - Keynote: Catherine Bourgain, INSERM, “Never alone with the genome! Making  a diagnosis based on WGS data”.
  - Presentations: Martina von Arx, UNIGE, “Personal Medicine at Home: Telemedicine, Surveillance, and the Cardiac Monitor” et Veronika Kalouguina, UNIL, “On the determinants and the role of the payers in the uptake of genetic testing and data sharing in personalized health”

• 11h15-12h30: Genomics, Environment and Public Health – Chair: Luca Chiapperino, UNIL
  - Keynote:  Xavier Guchet, Université de technologie de Compiègne, “Exposomics in the era of personalized medicine”.
  - Presentation:  Nolwenn Bühler, UNIL, “Capturing toxic exposure: exploring the making of permeable bodies in a swiss environmental health cohort”

• 13h30-14h45: Clinics and Molecular Knowledge – Chair: Nolwenn Bühler, UNIL
  - Keynote:  Mette Nordhal Svendsen & Mie Seest Dam, University of Copenhagen, “Personal Organoids: Patient personhood and the ethics of avoidance”.
  - Presentation:  Nils Graber, UNIL, “Experimental care in precision immuno-oncology. Biomedical platforms, experiential knowledge, and the materiality of immune cells”.
• 15h-16h15: Probing Predictions – Chair: Nils Graber, UNIL
  - Keynote:  Aaro Tupasela, University of Helsinki, “AuroraAI: Finland’s national AI program. From prediction, personalization and nudging to something far more modest.” ONLINE
  - Presentation:  Dana Mahr, UNIGE, “De-Personalized Health? Rethinking AI medicine, public participation and biomedical research”

Saturday November 6th

• 9h15-10h30: Data Politics and Governance – Chair: Francesco Panese, UNIL
  - Keynote:  Barbara Prainsack, University of Vienna, « Politics in, politics of data: making the governance of personalized health and biomedicine » ONLINE
  - Presentation:  Florian Jaton, UNIL, “Ground That: Enforcing a benchmark for neoantigen prediction in Precision Immuno-Oncology”.

• 10h45-12h45: Regulation and Ethics – Chair: Dana Mahr, University of Geneva
  - Keynotes:  Anna Berti Suman, Tilburg University, “When the drive to openness conflict with data protection: the paradigm of the health citizen scientist vis-à-vis the safeguards of the GDPR” ONLINE et Frédéric Erard, Swiss Institute of Bioinformatics, “When personalized health meets Swiss law: a tumultuous but not incompatible couple”.
  - Presentation:  Thibaud Deruelle, Veronika Kalouguina, Philipp Trein, Joël Wagner, UNIL, “Storage and Sharing of Personalized Health Data”.