Conférence
Enseignement et Formation
Santé
Insights into Caregiving for Children with 22q11 Deletion Syndrome
IHM is pleased to invite you to conferences and panel on caregiving for children with 22q11 deletion syndrome, exploring perspectives from families and healthcare professionals on managing this rare disease
- Date
- Horaires
- Lieu
- CHUV, Auditoire Jéquier-Doge
- Format
- Présentiel + en ligne
Wednesday, February 12, 2025, 5:00–6:30 PM, Jequier-Doge Auditorium, CHUV (hybrid format)
Insights into Caregiving for Children with 22q11 Deletion Syndrome: Perspectives on Managing a Rare Disease from Families and Healthcare Professionals
Lectures by Sophie Ayoub (Institute of Biomedical Ethics, University of Basel) and Colette Gendre (Nurse and Coordinator of the 22q11.2 Multidisciplinary Clinic at CHUV), followed by a panel discussion with the speakers and Dr. Alessandra Strom (Biologist and Coordinator of the CHUV Rare Disease Center).
Moderated by Ralf Jox, IHM, CHUV-UNIL